Crew is finally off the ventilator! He's doing well so far, and that is great. We're all praying that he will get stronger and stronger with every tiny little breath. It is not uncommon for little guys with his type of illness to get tired out and require re-intubation. They left the Replogle tube (tube in his nose) in place, and put him on respiratory support called the RAM. This is a type of C-pap, but less supportive than full C-pap. We hope that he will maintain on this support or even less support like a nasal cannula. In the video above you can see the breathing tube coming out, and the placement of the RAM prongs. If you listen closely you can hear his raspy little cry. Don't worry, his cry has become much stronger and louder already.
Poor guy has been a little fussy since coming off the ventilator, but has discovered sucking. He loves to suck on the pacifier and it seems to calm him right away. He also loves to snuggle his mommy. She was able to hold him skin-to-skin today for over an hour and he loved it. He rested more quietly and calmed immediately.
He's still not feeding. The surgeon explained that we are going to take things extremely slowly with his feeds. They will turn the suction off the Replogle tomorrow and see how his stomach responds to the excess gas. Then, hopefully by Friday, the feedings will start. We don't mind the fact that they are taking things slowly . . . the slower the better. We don't need any more set backs. He hasn't pooped since before his surgery, so we need to get those bowels moving.
We are not out of the woods yet . . . not at all. We still need your prayers. Crew has come a long way . . . but still has a long list of obstacles to overcome.
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| Skin to skin with mommy |
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| Precious little face |
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