Thursday, October 17, 2013

2 Months Corrected (Better Late Than Never, RIGHT?)

Our little muffin is already 2 months corrected (Actually 2.5 months now!)!  Crew is doing great ... still no SVT since we have been home so keep your fingers crossed that this continues!  We saw the Pulmonologist and Endocrinologist this past month.  Nothing new with Pulmonology - Crew is still on oxygen while he sleeps ... We have to put him in a straight jacket at night because the little bugger is a grabber, but other than that this is going well!  The Endocrinologist increased his medication, but said that he is still on the low end of the dosage.  We will see Neurology, Oncology, and his Pediatrician next week.  The Oncologist will be checking Crew's labs again and if he has another "normal" workup he will put us in the clear - or at least for 3-6 months!  The Neurologist is going to be consulting with us as to when we feel safe putting Crew under anesthesia for an MRI ... we are hoping that won't need to be done until he is at least 6 months corrected! Oh, and he was 14.9 lbs at his last appointment!!!!! 

My days now consist of rocking, patting, wiping, burping, dressing, medicating, and sleeping when I can, but I am loving every second of it!  His huge smiles make it all worth while!

Crew started singing this past month ... it is the cutest thing you have ever seen.  When we sing to him (especially "You  Are My Sunshine"), he tries to hum along with us!  I will see if I can't post a video of it soon!  He is talking up a storm right now and still as smiley as can be!  Our first road trip to Grandma and Grandpa's went off without a hitch ... he seemed to like it there!! We had Crew blessed while we were in Rupert ... we didn't get as many pictures as we would have liked but here is what we did get (Thanks Nee Nee!)!  Thanks to everyone for all your support!!