I am not sure where to start! So many things are going on with Crew, from doctor visits to almost crawling!!
A quick update on Crew's health.... he has been doing great overall! No colds or sickness....YEAH!! He did have a fever for a couple of days that gave me a scare, but I think it might have just been teething related because this boy got another bottom tooth last week and his front tooth just popped through yesterday!
I will start with his heart ....still no SVT!!! The doctor has decided that we will start to wean his medications one at a time to see what happens. If he starts having SVT again, then we know he still needs the medication. But, if he continues to be SVT free then we may as well give his body a break! He said that Crew could go years without any episodes then start having them again so this will be a constant thing on this momma's mind. We are now officially weaned off of the Flecanide and we will start to wean the Sotalol this month. Keeping our fingers crossed!
We had an MRI of Crew's brain and CT Scan of his lungs done at the end of January and that all looked great! No signs of lung disease!! His brain MRI showed a small, old bleed that must have happened at birth or in utero. The bleed has since scarred over and the Neurologist did not suspect that it would cause Crew any problems in the future and we were officially discharged from Neuro!! YAY-we have now been discharged from Oncology and Neurology!! He continues to need his oxygen at night and we are not sure why...hoping this is something he will just outgrow. He is still also on his thyroid medication and will most likely be on that until he is 2 or 3, at which point we will try him off. We tried him off his Prilosec, but that did not go well so we are back on that too! All in all though, Crew is doing AMAZING...he is just a little feisty and spoiled!!
Crew has become quite the busy body!! He loves his car/walker and can get around the kitchen floor a little too well-he loves to taunt Griggs and chase him around. If the fridge is open, he will cruise over to the fridge, if the dishwasher is open, he finds his way over there! He has even started finding his way to me and pulling on my pant legs! He also loves his bouncy and being able to "jump around." He started pushing up on all fours....we are so close to crawling (he also does the commando crawl well)!! If he wants something bad enough, he figures out a way to get to it!! I have a feeling I am going to be in big trouble when he figures this out better! He started giving kisses, which we all LOVE!! He is so tender with his kisses too!
I can't leave a room (or anyone for that matter) or walk away from him without him noticing, and he reaches out for us as soon as we head towards him. We taught him this recently and it is kinda backfiring! He likes it when his dad comes home from work because that means play time!! His dad is also pretty good at getting him down for his evening nap.
The stranger anxiety is beginning to set in with him, but hopefully this will pass! We have been in quarantine this winter, but maybe as the cold/flu season passes we will be able to get out and see people more!! For now, he knows his Mom, Dad, Nee Nee, Aunt Linda (she visits weekly) and his Grandma and Grandpa Schow. I have a feeling he will be very social when he actually gets the chance!
Crew likes textures as I find him scratching his little fingers on things often. He likes his oatmeal, pears, bananas, apples, and sweet potatoes (we thought the sweet potatoes made him sick but the second time was a success), squash, carrots, mangoes, peaches, prunes, cheerios, puffs, rice, pancakes, and anything we might be eating that he can taste. He did not, however, like avocados or peas!! I will try those again later though because how can you not like avocados!! He loves to drink water and has figured out how to drink it from a sippy cup and a straw!!
Of course we have tons of pictures of the little stinker, which have all been posted on Instagram, but here are a few of his 6 month photo shoot for the blog!!