Saturday, June 22, 2013

A Frustrating Day!

Yesterday was a bit frustrating!  Crew had another episode of SVT  that lasted about 40 to 50 minutes.  Throughout the process of conversion, they first try the non-medicine route.  This can be very stressful for the parents to watch.  They will deep suction trying to elicit a cough, they also try to gag either using a suction catheter or finger, and last they will try to get him to "bear down" to push while pooping with an enema.  When none of these options work, then they bust out the Adenosine. Well, it took 4 attempts with increased doses to finally convert him.   Then 2 hours later, he did it again.  This time one dose did the trick.  He went the entire night without an episode.  This morning he had a small little episode that converted with the enema trick.  The Cardiologist is supposed to be coming in to meet with us this morning to discuss all of the above.

Crew weighs 4 pounds 13 ounces today.  Nickole his RT (first time she's had him) came in and switched him from the RAM to a hi-flow nasal cannula.  Hopefully he will have the stamina to tolerate this.  This cannula is smaller and softer and easier to manage.  He's now having yellow seedy stools . . . hurray!!  Should I post a photo??  He's still a little slow to digest his food.  He's now getting 13mls every three hours and moving about half of that through.  

I'll report more later . . . with photos.

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