Crew Wesley Miller: "Rooming in"

Our little boy is "rooming in" tonight. What is "rooming in" you ask? It's when babies get to stay with their parents in a separate room overnight. The room is similar to a hotel room with a queen bed and TV and bathroom . . . except the babies are still attached to a monitor that is remotely reviewed by a nurse 24/7. Parents get to do all the cares and medications and pretend like they are at home. Crew got his NG tube out this morning, so he now has to get all his medications by mouth.

He's doing great . . . except for some periodic breathing and "brady" spells. The doctors decided it was a good idea to stop his Caffeine yesterday. Well, he wasn't ready!! So, it got restarted today and now we have to wait until it gets back in his system to help stop the "apnea". Hopefully by tomorrow he'll be back to himself.

SVT??? I suppose you're all wondering about the SVT. Well, since we don't like to say it out loud . . . I won't, I'll just let you read it . . . NO SVT SINCE SUNDAY!!! Flecainide and Sotalol seem to be the recipe we were looking for. If no SVT through the weekend, and if he remains off his oxygen, and if his "spells" subside . . . we could be looking at discharge early next week.

Crew will need to pass a car seat study. The nurses will secure him in his car seat and run a test strip of his heart rate, breathing pattern and oxygen levels for 90 minutes. This study is done to make sure that he can breathe in the position he will be sitting in. If he does well in the car seat he will be in the clear for take-off! Since he will be going home on an apnea monitor, his mom and dad will need monitor teaching . . . should only take an hour or so. Then, they will also have to get all his prescriptions filled. Holy cow . . . are we really talking about going home?

Once the little bugger is at home, he will be in strict quarantine. No visitors that are sick or are living with anyone who is sick. Especially, no viral or respiratory infections! Anyone who does visit will need to WASH, WASH, WASH their hands upon entering the house. Did I mention the importance of hand washing? Because of how sick his lungs were at birth, and because he just recently came off his oxygen . . . if he gets a little cold . . . it could land him right back in the hospital.

Crew weighs 7 pounds 1 ounce today! He's growing like a weed.