No tubes. . . for about 30 minutes anyway.

So, the Propanolol should be out of Crew's system by now.  No "SVT's" for about 36 hours . . .  and then he had 2 last night that required some vagal maneuvering.  So, today they increased the "Flecainide" dose a little more.  The doctors decided to remove his feeding tube this morning . . . which is where he's been getting all his meds.  Well, tonight he had to take them by mouth.  They were due after he was already nice and full from breastfeeding.  We practically had to force them down . . . and he prompty threw them up . . . uggghhh.  Now it's a total bummer because he most likely didn't hold any of the meds down.  Right after he puked, he went in to SVT again and this episode lasted about 45 minutes.  By the time all of this was over, he was wiped out . . . poor guy.  Once again, we'll have to wait to see what happens.  They sent a blood sample yesterday to check the actual levels of the Flec in his system, and to make sure they're even therapeutic.  Hopefully this one missed dose doesn't mess things up too much.  Needless to say, they are putting his feeding tube back in for medications . . . until we get the SVT's under control.

So, for whatever reason the doctors are getting  aggressive with our little guy.  They decided to try him off oxygen today too.  When he was awake, he did amazing . . .  Sats in the 90s.  However, when he fell asleep his breathing became periodic(pauses in his breathing pattern) and he started to desaturate and about 30 min later had to get his nasal cannula back.  The doctors also thought it might be best to give him another dose of the Caffeine to try to wipe out the periodic breathing.  So one step forward, and two steps back?

Crew had his eye exam last week and they are not quite mature yet, so he'll get a re-check two weeks after his last check-up.  He should also be getting his MRI this week sometime . . . depending on the SVT situation.  He's gaining weight like crazy and is already 6 pounds 1 ounce.  

Little snuggle bug's getting eyelashes

So fun to see him without tubes . . . even if it only lasted 30 minutes.