tag:blogger.com,1999:blog-3347066190601649712024-02-19T09:17:22.703-08:00Crew Wesley Millerjenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.comBlogger66125tag:blogger.com,1999:blog-334706619060164971.post-37567394040557316372014-03-06T11:20:00.001-08:002014-03-06T12:17:37.208-08:00It has been way too long.....<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">I am not sure where to start! So many things are going on with Crew, from doctor visits to almost crawling!!</span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">A quick update on Crew's health.... he has been doing great overall! No colds or sickness....YEAH!! He did have a fever for a couple of days that gave me a scare, but I think it might have just been teething related because this boy got another bottom tooth last week and his front tooth just popped through yesterday! </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">I will start with his heart ....still no SVT!!! The doctor has decided that we will start to wean his medications one at a time to see what happens. If he starts having SVT again, then we know he still needs the medication. But, if he continues to be SVT free then we may as well give his body a break! He said that Crew could go years without any episodes then start having them again so this will be a constant thing on this momma's mind. We are now officially weaned off of the Flecanide and we will start to wean the Sotalol this month. Keeping our fingers crossed!</span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We had an MRI of Crew's brain and CT Scan of his lungs done at the end of January and that all looked great! No signs of lung disease!! His brain MRI showed a small, old bleed that must have happened at birth or in utero. The bleed has since scarred over and the Neurologist did not suspect that it would cause Crew any problems in the future and we were officially discharged from Neuro!! YAY-we have now been discharged from Oncology and Neurology!! He continues to need his oxygen at night and we are not sure why...hoping this is something he will just outgrow. He is still also on his thyroid medication and will most likely be on that until he is 2 or 3, at which point we will try him off. We tried him off his Prilosec, but that did not go well so we are back on that too! All in all though, Crew is doing AMAZING...he is just a little feisty and spoiled!!</span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew has become quite the busy body!! He loves his car/walker and can get around the kitchen floor a little too well-he loves to taunt Griggs and chase him around. If the fridge is open, he will cruise over to the fridge, if the dishwasher is open, he finds his way over there! He has even started finding his way to me and pulling on my pant legs! He also loves his bouncy and being able to "jump around." He started pushing up on all fours....we are so close to crawling (he also does the commando crawl well)!! If he wants something bad enough, he figures out a way to get to it!! I have a feeling I am going to be in big trouble when he figures this out better! He started giving kisses, which we all LOVE!! He is so tender with his kisses too! </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">I can't leave a room (or anyone for that matter) or walk away from him without him noticing, and he reaches out for us as soon as we head towards him. We taught him this recently and it is kinda backfiring! He likes it when his dad comes home from work because that means play time!! His dad is also pretty good at getting him down for his evening nap. </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">The stranger anxiety is beginning to set in with him, but hopefully this will pass! We have been in quarantine this winter, but maybe as the cold/flu season passes we will be able to get out and see people more!! For now, he knows his Mom, Dad, Nee Nee, Aunt Linda (she visits weekly) and his Grandma and Grandpa Schow. I have a feeling he will be very social when he actually gets the chance! </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew likes textures as I find him scratching his little fingers on things often. He likes his oatmeal, pears, bananas, apples, and sweet potatoes (we thought the sweet potatoes made him sick but the second time was a success), squash, carrots, mangoes, peaches, prunes, cheerios, puffs, rice, pancakes, and anything we might be eating that he can taste. He did not, however, like avocados or peas!! I will try those again later though because how can you not like avocados!! He loves to drink water and has figured out how to drink it from a sippy cup and a straw!! </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Of course we have tons of pictures of the little stinker, which have all been posted on Instagram, but here are a few of his 6 month photo shoot for the blog!! </span></span><br />
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-14240818720461401332013-12-09T14:26:00.000-08:002013-12-09T16:56:55.920-08:004 Months "Corrected" Already!<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Our handsome little man was 4 months "corrected" on the 2nd of December! It is really hard to believe that 6 months have gone by since he came into the world and 4 months since we brought him home! </span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew is turning into quite the character, and we are loving every second of it! Just in this past week, he has started eating rice cereal (December 2nd), had 2 teeth pop through (December 3rd when I felt them), started sitting up "kind-of" (December 5th), and rolled over from his back to his tummy by himself (December 7th)!! The dates are so that I can remember them!!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">The rice cereal thing wasn't going so great so we switched to single grain oatmeal yesterday and he seems to be liking that better. He would gag on the rice cereal and make some pretty funny faces. He even had tears over it one night ... that is when I decided to switch it up!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">As for his teeth ... I was not at all expecting teeth already!! Crew had been chewing and drooling like crazy and it was mentioned to me by his dad that he was probably teething to which I said "not yet!" Then, one day while I was letting him chew on my finger, I told Nee Nee that I thought I felt a tooth and sure enough I looked and their they were, 2 of them!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">The sitting up is still in the making, but his balance is getting much better! If I prop him just right he will stay sitting up (a little hunched over) for quite awhile. He will even look around the room while he is doing it. This is progress compared to last month! Crew has also been trying to roll over for a couple weeks. Just a couple of days ago, I was on the floor with him (shopping online) and looked over to find him on his tummy! He had rolled over all by himself!! He did it again on his play-mat today when I wasn't looking!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">As for Crew's health ... he has been great! No colds, fevers, or even a runny nose!! Knock on wood! His dad likes to make fun of me for being OCD about everyone being clean and washing hands (I kind of am) but it's keeping the little guy healthy!! We still have not had any SVT, which is pretty amazing to us! Crew is still on his 2 heart medications to regulate his heart, but Dr. Womack may be taking him off those soon to see if the SVT returns. If it does, he will go back on the medication until he can have an ablation. And, if it doesn't then there is a slight chance that he has outgrown that pathway his heart was taking. Our little man is still on oxygen at night and his heart monitor, but those alarms are going off less and less!! We did a sleep study this past week to try to find out why he is still needing the oxygen, but we have not heard the results yet! The sleep study was not the most restful night for Crew or I, but I am sure glad we did it and that it is over! We also did a swallow study before Thanksgiving to see if he was aspirating and that all checked out good. He is refluxing, but not aspirating. We see the NICU follow-up doctor next week, as well as Dr. Flynn (Endocrinologist) and Dr. Tippets (Pulmonologist) for follow-ups. All in all, his health and his progression have been such a blessing to us and we are grateful every day for how wonderful he is doing! Oh, and I can't forget to mention that at his last appointment, which was well over a week ago he weighed in at 16.12lbs!!! I am certain he is in the 17-18lb mark by now though!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Thanksgiving was spent this year split between his Aunt Michelle and Uncle Chet's house and his Grandma and Grandpa Schow's house. Crew also got to meet Santa for the first time at the annual Schow Christmas Party! I've posted some pictures below of the past month for your viewing pleasure....</span></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Meeting Santa</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Christmas City, Rupert, Idaho</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">His Version of Sitting Up - Oh, and the Shirt is Pretty Cute Too!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Teeth</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Cousins - Crew loved them!!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Thanksgiving</span></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><span id="goog_474124456"></span><span id="goog_474124457"></span><br /></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Practicing Tummy Time</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Crew and Momma Snuggling After the Sleep Study</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOZ7KapuSdKQVnRJlysB4TJyCcdKpDfKCA1n4hy7cKQOOy-F4f2LbYKRMBXiEWE8w3YnoFnlJGVC9fAOhfJgP2eyafSUJ7JbRyhu5LdPuOeDCJcruA2iJXtkoM1G39HXq8-O2e6uOI00Q0/s1600/image.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOZ7KapuSdKQVnRJlysB4TJyCcdKpDfKCA1n4hy7cKQOOy-F4f2LbYKRMBXiEWE8w3YnoFnlJGVC9fAOhfJgP2eyafSUJ7JbRyhu5LdPuOeDCJcruA2iJXtkoM1G39HXq8-O2e6uOI00Q0/s400/image.jpeg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">My Little Man Today Being a Ham!</span></td><td class="tr-caption" style="text-align: center;"></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><span id="goog_474124464"></span><span id="goog_474124465"></span><br /></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">And, a Few From His Recent Photo Shoot by Nee Nee ...</span></td></tr>
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Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-15304490235384104752013-11-06T13:40:00.000-08:002013-11-06T13:40:19.460-08:00Snapshots.....<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTeH472_Dqzrc9a3ReUNSiVwR0rIs3HhOQvEejZFBvW-UNA1uBJH34Lvfu0xMWC8tWi1Y9P500Jds-qYkMnO382fbQq1kJJgvAtVdSS41USwTsKA8TYgAJn9Y1Rq_ghAxXPtKk2vnqMpyx/s1600/photo(1).JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTeH472_Dqzrc9a3ReUNSiVwR0rIs3HhOQvEejZFBvW-UNA1uBJH34Lvfu0xMWC8tWi1Y9P500Jds-qYkMnO382fbQq1kJJgvAtVdSS41USwTsKA8TYgAJn9Y1Rq_ghAxXPtKk2vnqMpyx/s400/photo(1).JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Our little bag of popcorn ... His dad felt sorry for him that he had to be dressed up as a bag of popcorn!! Halloween 2013!</span></td><td class="tr-caption" style="text-align: center;"><u><br /></u></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Discovering Leaves ... Fall 2013</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Playing with Hats</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Crew's New Bathtub ... he grew out of the old one!!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Just being cute!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">This is what happens when you do the airplane after dinner!! Crew finally got his dad and we loved it!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Snuggling Momma</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZ6fCBcvQmku-JIMIrYnAOqwe0uQ_Sr-EB4VDHNtQkUgaNh6cQjEcPbWUO8LcqKFihz1hNGt4LlbQUQx3vJLqtpa0fK_B1nMBFsZcAL0Tn_wTq9W77IIS8dQJvocdhFboBvLMh4uluiC1H/s1600/photo(9).JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZ6fCBcvQmku-JIMIrYnAOqwe0uQ_Sr-EB4VDHNtQkUgaNh6cQjEcPbWUO8LcqKFihz1hNGt4LlbQUQx3vJLqtpa0fK_B1nMBFsZcAL0Tn_wTq9W77IIS8dQJvocdhFboBvLMh4uluiC1H/s400/photo(9).JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Oxygen Baby</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">At his cousin Boone's football game!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Dreaming about his Momma!!!!</span></td></tr>
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-85676355431293151722013-11-05T18:22:00.002-08:002013-11-05T18:22:35.737-08:00A 10 minute photoshoot while babysitting<div class="separator" style="clear: both; text-align: center;">
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-58890805524787039692013-11-05T13:50:00.000-08:002013-11-05T14:03:10.703-08:003 Months "Corrected"<div style="text-align: justify;">
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Our sweet boy was 3 months "corrected" on November 2nd!! He is weighing in now at a whopping 15 lbs 14 oz and is 24.75 inches long!! I can't believe how fast he is growing ... it makes this Momma sad! He is even in some 6-12 month clothing already! </span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">As for Crew's appointments, everything is going great! We had another normal lab work-up with the Hematologist so we have been dismissed from him unless Crew shows us any signs that might cause us concern (fevers, sores in the mouth, nose bleeds, constant colds, etc). YEAH!!! Knock on wood, he has not come down with any illnesses yet!!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">He is still on oxygen while he sleeps and that continues to be ok ... it's not his favorite thing but he is getting used to it! I will see the Pulmonologist again here soon to discuss why it is he thinks Crew hasn't outgrown his need for the oxygen. He mentioned maybe doing a sleep study on Crew to see exactly why he needs it. We also recently saw the Neurologist and we have decided, along with his Pulmonologist, that we will wait to do a MRI on him until he is 6 months corrected. So, we are looking at maybe February for that. His doctor wants to do a contrast MRI and he will need to be sedated so it will most likely be an overnight procedure so that he can be monitored. The poor guys also had his immunizations this past month and boy did he hate that!! He went from happy to MAD in about 1 second and he took a while to calm after the fact ... he was pretty upset! Oh yah, still no SVT!!!!!!!!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew continues to love his interaction with us ... the toys don't quite do it (he requires just a little attention:)!! He giggled for me for the first time last week and it brought tears to me eyes ... it was the sweetest sound I think I have ever heard! We spent the rest of the day trying to get him to do it again with no luck. Nee Nee has since found a tickle spot on him on his back that makes him giggle if he is in the right mood! He is still pretty selfish with his giggles! He is also starting to grasp things if they are close to his hands ... he isn't quite reaching for things yet, but almost! He has recently figured out how to complain and has a new sad cry that would just about break anyone's heart ... it works for Momma that's for sure! Crew discovered his hand and fingers the other day and when they catch his eye, he will watch them closely. He rolls front to back and we are currently working on back to front! He also still loves the car and the stroller ... thankfully!!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We tried our hardest to get a smile out of him for his monthly picture and this was the best we could do! He has figured out the "camera" thing ... when it comes out, he stops smiling and just stares. Almost like he knows what it is we want!</span></span></div>
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-69800841397235032642013-11-04T11:40:00.002-08:002013-11-04T11:40:41.768-08:00Singing with his Momma . . . about a month ago<div class="separator" style="clear: both; text-align: center;">
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-81194611413191871512013-10-17T14:49:00.001-07:002013-10-17T14:49:28.918-07:002 Months Corrected (Better Late Than Never, RIGHT?)<div class="separator" style="clear: both; text-align: center;">
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<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">Our little muffin is already 2 months corrected (Actually 2.5 months now!)! Crew is doing great ... still no SVT since we have been home so keep your fingers crossed that this continues! We saw the Pulmonologist and Endocrinologist this past month. Nothing new with <span class="st">Pulmonology</span> - Crew is still on oxygen while he sleeps ... We have to put him in a straight jacket at night because the little bugger is a grabber, but other than that this is going well! The Endocrinologist increased his medication, but said that he is still on the low end of the dosage. We will see Neurology, Oncology, and his Pediatrician next week. The Oncologist will be checking Crew's labs again and if he has another "normal" workup he will put us in the clear - or at least for 3-6 months! The Neurologist is going to be consulting with us as to when we feel safe putting Crew under anesthesia for an MRI ... we are hoping that won't need to be done until he is at least 6 months corrected! Oh, and he was 14.9 lbs at his last appointment!!!!! </span></span></div>
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<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">My days now consist of rocking, patting, wiping, burping, dressing, medicating, and sleeping when I can, but I am loving every second of it! His huge smiles make it all worth while!</span></span></div>
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<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">Crew started singing this past month ... it is the cutest thing you have ever seen. When we sing to him (especially "You Are My Sunshine"), he tries to hum along with us! I will see if I can't post a video of it soon! He is talking up a storm right now and still as smiley as can be! Our first road trip to Grandma and Grandpa's went off without a hitch ... he seemed to like it there!! We had Crew blessed while we were in Rupert ... we didn't get as many pictures as we would have liked but here is what we did get (Thanks Nee Nee!)! Thanks to everyone for all your support!!</span></span></div>
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-50145545576666798092013-09-29T11:56:00.001-07:002013-09-29T11:58:33.513-07:00Has it been over 2 weeks already?<div style="text-align: justify;">
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">It has been a while since I posted last so I thought I would give everyone a quick update... Crew has been doing great! He had another eye appointment last week and his right eye is fully mature and his left is almost there! Dr. Lee cleared him and we don't have to see her again for his eyes for 3 months!! Yeah! </span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew did have to go back on oxygen this week so that was a little bit of bad news, but we will take it. He only has to wear it when he is sleeping so not too bad... he doesn't much care for it though! We did an oxygen study on him 2 different nights and the Pulmonologist felt like he could use some more oxygen when he sleeps. We think this is just due to how sick his lungs were in the beginning and that they are taking time to regenerate to their full capacity. </span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We also saw the Hematologist 2 week ago and Crew's labs continued to trend low. Dr. Camilo (the Oncologist/Hematologist) spent a lot of time with us going over what could be causing this and what he felt it might be...I left there feeling very overwhelmed and scared. Well, we went again this past week for our 2 week check-up and Crew's lab work was NORMAL!! Dr. Camilo was as pleased with this and we were!! He said that this was a VERY good sign and they he would just check it again in a month. If his numbers continue to be normal he will clear us with just a follow-up down the road!! <b><u>Such great news</u></b>. As I sat waiting for our appointment with Dr. Camilo at the Mountain States Tumor Institute for Pediatrics this past week, I realized again how blessed we are to have such a healthy boy at home with us!! Watching the children and families come in and out of that waiting room made me feel truly thankful for what we have been handed. </span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Now, on to what Crew has been up to lately.....he is smiling like crazy and those smiles melt me!! He is the most smiley right when he wakes up!! He also discovered his voice this week and tells us all kinds of stories! He has been a much happier boy these past couple of weeks, which we are really loving! He likes to look at his toys and loves to watch the ceiling fan. The turkey is already fitting into 3-6 month clothing without much room to grow! I packed up his 0-3 month things and almost shed a tear...he is growing way too fast. At his appointment this past week he was 13 and 1/2 lbs!!! We will be taking our first road trip this coming weekend (Rupert) and I feel like I am going to have to pack the house up.....babies need a lot of stuff!! We are looking forward to getting out of the house for a few days for some different scenery....hopefully he likes Grandma and Grandpas house!!</span></span></div>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Here is a sneak peak at our happy boy!! I will have Jen post more photos and maybe some video too so stay tuned....</span></span></div>
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com1tag:blogger.com,1999:blog-334706619060164971.post-8007890042949651172013-09-08T16:45:00.000-07:002013-09-08T20:32:07.844-07:005 Weeks Corrected . . . and Cute as Ever!!!<br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">"HBC" . . . High butt crack</span></td></tr>
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-88169794931975411492013-09-07T09:22:00.000-07:002013-09-07T13:24:37.248-07:00Time flies when your having fun!!<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We have been trying to get Crew out of the house a little more... he is getting tired of always having to see a doctor every time he goes out! He went on his first trip to Costco on Monday and his first football game (his cousin Colby Schow) last night. I am not sure he knew he was at either place because we kept him covered and he slept through both outings... he loves his car seat and stroller!</span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><br /></span></span>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We had two doctors appointments this week. First, Crew saw his pulmonologist, Dr. Tippets, and he thought he looked great. Dr. Tippets started talking to us about taking away Crew's heart monitor that he wears to tell us if his rate goes below 80 or above 200 and also alerts us if he does not breath for more than 20 seconds. He told me I could kindly hand the monitor over when he was ready to take it, or he could tear it out of my fingers... I told him he will probably have to tear it out of my fingers!! It is a step in the right direction, but it scares me nonetheless!</span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><br /></span></span>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Next, we saw the ophthalmologist again and she said Crew's eyes are still premature, and although we thought this was going to be his last check up, she wants to check his eyes one more time just to be on the cautious side of things! She said things look normal, but she can't clear him until he is a little older... around 47-48 weeks corrected.</span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><br /></span></span>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">The physical therapist is still coming to the house every other week and she is very impressed with Crew's head control and his overall strength and progression. We no longer need our home nurse however because Crew is growing like a weed... oh, by the way, he was 11 pounds 12 ounces at his visit this week!!</span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We see the hemotologist next week so I will update as soon as I know more. </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Crew
has a few nicknames so far... We call him "Ah-Gee" because he makes
this sound whenever he complains... Nee Nee calls him "Grouch o
Marx...Rolly Polly Olly... Snuggle Buggle...and Fatty Mcgee" to name a
few, and I think those names speak for themselves!! I like to call him
"Big and Bossy and Muffy." Daddy got strep throat this week so he was quarantined from Crew, which was not easy because his routine has been to come home, shower, and hog him for the rest of the evening! Nee Nee wants me to add to this post that she thinks Crew's poop smells like cake batter... Apparently I am feeding him straight cream!! </span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><br /></span></span>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Music
is one of Crew's loves right now and it almost always calms him to be
sung to or just having music played for him....we told him it would be
OK if he wanted to grow up and be Tim Mcgraw!! He is also starting to
smile a lot more, but we still can't say whether or not it is purposeful
or just gas!! And, last but not least, he
still LOVES to be snuggled!!</span></span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">A visit from Crew's Great Aunt and Uncle, Nancy and Gary, from New York!</span></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">A visit from Crew's Great Aunt and Uncle, Janet and Wayne, from Chicago!!</span></span></td></tr>
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">We want to thank Crew's Great Aunts and Uncles for making the long trip out to meet him... we hope to see you all again soon!</span></span><br />
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<br />Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com1tag:blogger.com,1999:blog-334706619060164971.post-59073186362698005062013-08-31T12:49:00.001-07:002013-08-31T14:15:11.814-07:00One Month Corrected!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7nzF-Y78bxOEyb5AipQfcjuQZS3NwxCjqZwjOvYcrtLcr2OVt8MSLEXaYJDLyaabruImOS63SHyEE-Cqc8tEM-uWyCjK61Zrj-G6jJSGRp5Wo0CDh0w6cN4w5zzUfjnJE5GtMnWykCloT/s1600/DSC_3438.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7nzF-Y78bxOEyb5AipQfcjuQZS3NwxCjqZwjOvYcrtLcr2OVt8MSLEXaYJDLyaabruImOS63SHyEE-Cqc8tEM-uWyCjK61Zrj-G6jJSGRp5Wo0CDh0w6cN4w5zzUfjnJE5GtMnWykCloT/s640/DSC_3438.jpg" width="425" /></a></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Our sweet baby Crew will be One month corrected on Monday . . . how the time flies!! This means he'll be one month past his actual due date of August 2nd. We expect him to progress and meet milestones according to his corrected age. </span></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Crew is what we like to call a little “bossy!” He loves being held . . . sometimes even all night!!! Crew loves to be outside and went on his first walk on August 3rd. Crew is a 4 time sneezer, LOVES his spa (bath) time, likes to sit up and look around, loves the car and his stroller, likes being sung to, and loves his Aunt Nee Nee!! He even smiled for me for the first time awake and his mom was a little upset about it (even though it was probably just a gas bubble!).</span></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">At Crew’s doctor’s appointment yesterday, he weighed 11 pounds 3 ounces!!! Can you believe that? He is growing like a weed and we tell him that he is naughty because we want him to stay little forever!! The little fart takes 5 to 6 ounces at a time. As for the doctor’s appointments….they have all gone well. Crew has worn a “holter monitor” (a heart monitor which has 5 leads) a couple of times to measure his heart activity for 24 hours and Dr. Womack saw no SVT . . . YEAH!! </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">He had another CBC done a couple of weeks ago and his ANC is still trending low so he will have to consult with the hematologist again to do some further genetic and familial testing.</span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">They may even do some autoimmune testing on Momma to make sure she did not pass anything on to him that he might just grow out of.</span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">On a good note . . . his hematocrit was up to 36 – right where it needs to be!!</span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Crew’s eyes continue to be premature, but Dr. Lee said that if his next eye exam shows that nothing has changed for the worse that he is in the clear and will not need any more eye exams for a while . . . whew! </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">He also saw his Endocrinologist and we found out that he needs to stay on his Synthroid medication until he is about 2 years old to make sure his thyroid aids in proper brain development. </span></div>
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<span style="font-family: Georgia, Times New Roman, serif; font-size: large;">Dalynn said that a few of you have been asking about a baby shower. We have decided to cancel the shower. </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">Because of his lowered immune system, Crew</span><span style="font-family: Georgia, Times New Roman, serif; font-size: large;"> is still very susceptible to infection. We knew we couldn’t throw a shower now without him there to show off to everyone!! Gretchen is still registered at Target and Babies R Us. </span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">For those of you who want to meet Crew . . . Terrel</span><span style="font-family: Georgia, Times New Roman, serif; font-size: large;"> and Gretchen are happy to have <i><u>HEALTHY</u></i> visitors . . . just be sure to call or text first!! </span></div>
jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-36319957426766304732013-08-31T07:00:00.000-07:002013-08-31T15:09:02.439-07:00SOME of Crew's Nurses!!<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Kim</span></span></td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Heather</span></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Heather reading to Crew</span></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Jana</span></span></td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit_TifVoPmqpZ11aISHpxyrDS_ikXQJ9G4xmlipEiK6DIFy9Cp1d2tWR5Hl88BukMj9HPVqoHDRa74pY8IsezJhpI8tFJEBjvcT_hmu2Fa1YYa_rNRU4XET6SDXf2IMHIcj2ROTMcF4l9M/s1600/IMG_0196.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit_TifVoPmqpZ11aISHpxyrDS_ikXQJ9G4xmlipEiK6DIFy9Cp1d2tWR5Hl88BukMj9HPVqoHDRa74pY8IsezJhpI8tFJEBjvcT_hmu2Fa1YYa_rNRU4XET6SDXf2IMHIcj2ROTMcF4l9M/s400/IMG_0196.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Lena</span></span></td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiD5BoQtTWCXEdDIkekxp3Zv2APbMxeNVxDTlzH-xpIJvmbO6zmDGsxqLivcJRvri8X5b0vPD397luc6m9tOhRtwnOncL3wueRddP2NU7EuCmzMwMw6ngCLNI7ZCS3VQof35wS0CChyphenhyphenyNHQ/s1600/IMG_0199.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiD5BoQtTWCXEdDIkekxp3Zv2APbMxeNVxDTlzH-xpIJvmbO6zmDGsxqLivcJRvri8X5b0vPD397luc6m9tOhRtwnOncL3wueRddP2NU7EuCmzMwMw6ngCLNI7ZCS3VQof35wS0CChyphenhyphenyNHQ/s400/IMG_0199.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Jamie</span></span></td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgn8ZFqIOCtC6pApOaRxvWmeP5PEM0skx-ghyphenhyphenNilSo1q1REYTS-l8S36fsJ6CpGiUzYAsLeHAkTvk7eGRsQ480or14BoewJZoJGuaqc5gbOdFbw6aGbbDl5VcP6d2CUtCdLAh1QPeSfdpbY/s1600/IMG_0200.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgn8ZFqIOCtC6pApOaRxvWmeP5PEM0skx-ghyphenhyphenNilSo1q1REYTS-l8S36fsJ6CpGiUzYAsLeHAkTvk7eGRsQ480or14BoewJZoJGuaqc5gbOdFbw6aGbbDl5VcP6d2CUtCdLAh1QPeSfdpbY/s400/IMG_0200.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Ann Margaret</span></span></td></tr>
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<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">A BIG Thank You to ALL of Crew's Nurses, Respiratory Therapists, Nurse Practitioners, Doctors, PCCs, Lactation, Social Workers, and NICU Staff that helped take such great care of him! There are MANY more that we did not get pictures of, but you know who you are and we are forever grateful to all of you!! We miss you.....kind of!! :) </span></span><br />
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><br /></span></span>
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">Love, </span></span><br />
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">Terrel, Gretchen, and Crew</span></span><br />
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><br /></span></span>
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">P.S. I finally learned how to do blog posts!! </span></span>Anonymoushttp://www.blogger.com/profile/03202887635991761610noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-30115610531591236452013-08-16T11:24:00.000-07:002013-08-16T11:24:17.240-07:00A visit from the cousins<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg26UKzpWuE_TbZoj_AzFbInpcQ7VACUbETzGNewD7aA4rZbRNJLnidHIR0kdujQJ1SgWu2sIYqOH0nbz7qcW3mumzvIM96VRtX_63eaCsaOVj8IT2CvdM66PY2pkXz8vhZIXqNJ4VBOCL6/s1600/DSC_9839.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg26UKzpWuE_TbZoj_AzFbInpcQ7VACUbETzGNewD7aA4rZbRNJLnidHIR0kdujQJ1SgWu2sIYqOH0nbz7qcW3mumzvIM96VRtX_63eaCsaOVj8IT2CvdM66PY2pkXz8vhZIXqNJ4VBOCL6/s400/DSC_9839.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Payton</span></td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6USVF05qppD8lkjwbqusEqhB6gq8iuFuERxdFcKQJQq4orDGnd16IqR9vPifLJO4QlBLTqCRGcCs2ruZcoYJt5SuDH0DkBk0sK9yvRnLOJf7-m8mLfrgB8CD5FeD63oSSo-PvpAKbqZyd/s1600/DSC_9861c.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6USVF05qppD8lkjwbqusEqhB6gq8iuFuERxdFcKQJQq4orDGnd16IqR9vPifLJO4QlBLTqCRGcCs2ruZcoYJt5SuDH0DkBk0sK9yvRnLOJf7-m8mLfrgB8CD5FeD63oSSo-PvpAKbqZyd/s400/DSC_9861c.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Boone</span></td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYo8gKS50zDm3ExEahF85uoSWGnC-KWE9qNZtKtIj8xQWwZnyA_KMWYi3Y0WAkJSinpC47x632XR-1fxD8twfrn7yfIGNtGQwiV38WDqWj1Pt93VOyRKjn96LgiSuA1yQqkBF1vszbNyRP/s1600/DSC_9837c.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYo8gKS50zDm3ExEahF85uoSWGnC-KWE9qNZtKtIj8xQWwZnyA_KMWYi3Y0WAkJSinpC47x632XR-1fxD8twfrn7yfIGNtGQwiV38WDqWj1Pt93VOyRKjn96LgiSuA1yQqkBF1vszbNyRP/s400/DSC_9837c.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Delaney</span></td></tr>
</tbody></table>
<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-57214004321757417812013-08-13T08:50:00.002-07:002013-08-13T08:50:45.208-07:002 Weeks at Home . . . and going strong.<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/0LImK4gIq5o?feature=player_embedded' frameborder='0'></iframe></div>
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<span style="font-size: large;"><br /></span></div>
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<span style="font-size: large;">Plus this little video from his first afternoon at home outside.</span></div>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/FtVfXVmDf14?feature=player_embedded' frameborder='0'></iframe></div>
<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-78024854521634136692013-08-06T21:51:00.002-07:002013-08-06T21:52:15.627-07:00Crew's first full Photo Shoot<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2hXkbCOSWnSGCNrfKe8qZk_UKr4rKDqfP9RgWfYQf9IxbAAqP2vEKhuODGgLA8rJwtOkxBpIjkZMv38PrKqgUE6lcIhtvVOh5sPW8-VHlf0HY1dSfDQ2yvnda71u5DHNlzQyQ9qlk3kxe/s1600/DSC_9007cc.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2hXkbCOSWnSGCNrfKe8qZk_UKr4rKDqfP9RgWfYQf9IxbAAqP2vEKhuODGgLA8rJwtOkxBpIjkZMv38PrKqgUE6lcIhtvVOh5sPW8-VHlf0HY1dSfDQ2yvnda71u5DHNlzQyQ9qlk3kxe/s400/DSC_9007cc.jpg" width="400" /></a></div>
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com2tag:blogger.com,1999:blog-334706619060164971.post-60912065094517055392013-08-01T21:55:00.002-07:002013-08-01T22:19:17.946-07:00Just a couple fun pictures from Crew's first mini photo shoot outside today.<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Chilling in Grandpa Schow's fishing Creel</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Down by the water . . . mamma bear was a little nervous.</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Camping out for the night</span></td></tr>
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<span style="font-size: large;">And a couple bonus bath photos!</span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">He likes his new sink tub</span></td></tr>
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com1tag:blogger.com,1999:blog-334706619060164971.post-44283405634761362222013-07-30T20:42:00.000-07:002013-07-30T20:48:25.422-07:00He's Outta There!!!<div class="separator" style="clear: both; text-align: center;">
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">This is Dr. Crichton "Char" she was the doctor who wrote the discharge orders.</span></td></tr>
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<span style="font-size: large;">Rooming in went great! Crew passed his car seat study . . . barely! He has several medications and a home apnea monitor . . . but he's outta there. Terrel couldn't get out of there fast enough. His weight was 7 pounds 6 ounces today.</span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Enjoying fresh air outside for the first time</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Napping outside in the shade . . . after breaking out of jail.</span></td></tr>
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-90744631338182775312013-07-26T23:02:00.001-07:002013-07-27T09:22:43.018-07:00"Rooming in" <div class="separator" style="clear: both; text-align: left;">
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<span style="font-size: large;">Our little boy is "rooming in" tonight. What is "rooming in" you ask? It's when babies get to stay with their parents in a separate room overnight. The room is similar to a hotel room with a queen bed and TV and bathroom . . . except the babies are still attached to a monitor that is remotely reviewed by a nurse 24/7. Parents get to do all the cares and medications and pretend like they are at home. Crew got his NG tube out this morning, so he now has to get all his medications by mouth. </span></div>
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<span style="font-size: large;">He's doing great . . . except for some periodic breathing and "brady" spells. The doctors decided it was a good idea to stop his Caffeine yesterday. Well, he wasn't ready!! So, it got restarted today and now we have to wait until it gets back in his system to help stop the "apnea". Hopefully by tomorrow he'll be back to himself.</span></div>
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<span style="font-size: large;">SVT??? I suppose you're all wondering about the SVT. Well, since we don't like to say it out loud . . . I won't, I'll just let you read it . . . NO SVT SINCE SUNDAY!!! Flecainide and Sotalol seem to be the recipe we were looking for. If no SVT through the weekend, and if he remains off his oxygen, and if his "spells" subside . . . we could be looking at discharge early next week.</span></div>
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<span style="font-size: large;">Crew will need to pass a car seat study. The nurses will secure him in his car seat and run a test strip of his heart rate, breathing pattern and oxygen levels for 90 minutes. This study is done to make sure that he can breathe in the position he will be sitting in. If he does well in the car seat he will be in the clear for take-off! Since he will be going home on an apnea monitor, his mom and dad will need monitor teaching . . . should only take an hour or so. Then, they will also have to get all his prescriptions filled. Holy cow . . . are we really talking about going home?</span></div>
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<span style="font-size: large;">Once the little bugger is at home, he will be in strict quarantine. No visitors that are sick or are living with anyone who is sick. Especially, no viral or respiratory infections! Anyone who does visit will need to WASH, WASH, WASH their hands upon entering the house. Did I mention the importance of hand washing? Because of how sick his lungs were at birth, and because he just recently came off his oxygen . . . if he gets a little cold . . . it could land him right back in the hospital. </span></div>
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<span style="font-size: large;">Crew weighs 7 pounds 1 ounce today! He's growing like a weed.</span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Kissing his momma before feeding time</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">He got his two month immunizations yesterday.</span></td></tr>
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<br />jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-35291373228177277622013-07-22T15:26:00.001-07:002013-07-22T15:26:49.063-07:00Just being cute!<iframe allowfullscreen="" frameborder="0" height="270" src="//www.youtube.com/embed/jfYwBsKIr48" width="480"></iframe>jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-80911576086940283992013-07-21T22:19:00.000-07:002013-07-21T22:24:30.453-07:00Six Pounds, Eight Ounces Today!<div class="separator" style="clear: both; text-align: center;">
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<span style="font-size: large;">Where do I start? First, I'd like to mention that my sister (Crew's mother) . . . I won't mention any names . . . is still avoiding me when I try to teach her how to take over this blog. She conveniently avoids me or simply ignores me when I try to show her how to do it. So, when the blog is not updated daily . . . you can blame it on her. By the way, I warned her that I was going to Rat her out.</span><br />
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<span style="font-size: large;">So, Crew was started on the combination of Flecainide and Sotalol Wednesday night. Thursday he had a bad day . . . as I reported in the last post. Well, Friday we had no SVTs!! Hurray!! Wait . . . did we dare to celebrate this wondrous occasion out loud??? He actually went about 32ish hours without any SVT. We thought for sure that we'd finally found the recipe for him. However, Thursday night . . . according to his nurse . . . he was very fussy and restless. Then, Friday he continued on with this same behavior. He just wasn't acting himself at all. He started having a lot of apnea spells and dropping his heart rate. He also seemed to lose his appetite. We were worried that the Sotalol was causing an upset stomach and increased heartburn. Or perhaps even worse, maybe he was getting sick. The doctors ran some lab work and did x-rays just to make sure . . . nothing looked too concerning. They also gave him another bolus of Caffeine. By late Friday afternoon he was back on the Oxygen. So, no SVTs that day, but a little boy who just didn't act right. By bedtime Friday evening he was eating better and his "spells" had subsided greatly. We're hoping that all the fussiness was just from a "gassy" belly.</span><br />
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<span style="font-size: large;">Then Saturday mid-morning, things started up again. He had about 7 SVT episodes throughout the day. On the positive side, he only had to receive Adenosine once . . . the other 6 episodes converted with vagal maneuvers. Seriously, are we ever going to figure this out?? His mom was completely beat by the end of the day. So, now he's having SVTs but acting more like himself . . . what? They increased his Flecainide again.</span><br />
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<span style="font-size: large;">Today, I'm afraid to even report how well it went. It seems like whenever we celebrate things, he has a set-back. That . . . ladies and gentlemen . . . is the roller coaster ride of the NICU. He only had one SVT episode late morning, and converted himself while breastfeeding. He came off his Oxygen during the night shift last night and was did well all day. He is now on a maintenance dose of Caffeine . . . getting it daily. His periodic breathing is way better and he's having just a few minor "spells". B</span><span style="font-size: large;">ecause of the events of Saturday, the </span><span style="font-size: large;">Cardiologist decided to also increase his Sotalol. He weighs 6 pounds 8 ounces today. He's back to his "smiley" self and eating like a horse. Can we shoot for maybe 3 or 4 days without SVT please . . . or perhaps even forever???</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Thinking about how to escape the NICU</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">"Are you going to feed me or do I just have to<br /> sit around here looking cute all day?"<br /></span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">A much happier boy this morning</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">"Smile if you love me . . ."</span></td></tr>
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jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-18037543080806289152013-07-18T21:36:00.001-07:002013-07-18T21:42:27.528-07:00Another Day . . . Another Medication Combination<span style="font-size: large;">Well, we were very hopeful that the Flecainide was going to do the trick. It seemed to be working, as the SVT episodes were only lasting a few minutes and maybe once or twice a day. Then yesterday afternoon, Crew's little heart went into SVT and stayed there for almost two hours. None of the usual vagal maneuvers worked, so the decision was made to place another IV for Adenosine administration. However, after three attempts and no success at IV placement, he finally converted . . . on his own. Crew does "fine" during these episodes. He came off his nasal cannula yesterday and is on room air doing great. When he is in SVT his oxygen saturations are typically 100%. He's also wide awake and looking around. He just gets worn out after a couple hours with his little heart racing at 250 beats per minute. They've been placing bags of ice water on his face for 20 second intervals in attempt to create a "gasp" and decrease his heart rate. Poor guy, he takes it like a champ. It actually worked this morning . . . most of the time it doesn't. He otherwise gets his nose suctioned, saline drops in his nose, knees-to-chest, or rectal stimulation.</span><br />
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<span style="font-size: large;">So, last night the Cardiologist made the call to once again try yet a different approach. They cut his Flecainide dose in half, and added Sotalol. These two medications supposedly work well together, but have to be in lower doses. Unfortunately, because of the decrease in Flecainide, and the fact that it's going to take at least 5 doses of Sotalol for it to truly be in his system, Crew had a rough day. At last count this evening, he had already experienced 5 or 6 episodes of SVT today. After about 6 or 8 attempts to place an IV they were finally successful with a scalp vein. Poor dude! They've had to use Adenosine 3 times . . . but each time it only took one dose to convert him. Hopefully by morning, the Sotalol will be fully in his system and will be assisting the Flecainide in directing his heart electricity down the correct path. If not, there are still more options to try. Each time they make a change in medications, we have to wait a couple of days to allow them to absorb into his system before we know if they are working. This whole process is giving all of us ulcers . . . including the Cardiologist.</span><br />
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<span style="font-size: large;">On a positive note . . . like I said earlier . . . he is off oxygen! This is a huge step in the right direction. Hopefully he can keep it up. He is still eating very well and gaining weight. He has the feeding tube in place just for medications. As of this morning he weighs 6 pounds 4 ounces. His hematocrit levels are up to 28 . . . still low, but better than 25. His ANC (the fighting army of white blood cells) was in the 1000's this morning . . . which is a really good thing. And all his other lab work looked great. Whoops I almost forgot . . . his Thyroid levels were low. The Endocrinologist suggested they start him on Thyroid meds . . . so he'll start those tonight.</span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">The scalp IV looks scary</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">A binki makes everything better</span></td></tr>
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<span style="font-size: large;"><br /></span>jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com1tag:blogger.com,1999:blog-334706619060164971.post-90666320538651541392013-07-15T22:13:00.002-07:002013-07-15T22:13:29.101-07:00No tubes. . . for about 30 minutes anyway.<iframe allowfullscreen="" frameborder="0" height="344" src="//www.youtube.com/embed/GPtcQeTP-qQ" width="459"></iframe><br />
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<span style="font-size: large;">So, the Propanolol should be out of Crew's system by now. No "SVT's" for about 36 hours . . . and then he had 2 last night that required some vagal maneuvering. So, today they increased the "Flecainide" dose a little more. The doctors decided to remove his feeding tube this morning . . . which is where he's been getting all his meds. Well, tonight he had to take them by mouth. They were due after he was already nice and full from breastfeeding. We practically had to force them down . . . and he prompty threw them up . . . uggghhh. Now it's a total bummer because he most likely didn't hold any of the meds down. Right after he puked, he went in to SVT again and this episode lasted about 45 minutes. By the time all of this was over, he was wiped out . . . poor guy. Once again, we'll have to wait to see what happens. They sent a blood sample yesterday to check the actual levels of the Flec in his system, and to make sure they're even therapeutic. Hopefully this one missed dose doesn't mess things up too much. Needless to say, they are putting his feeding tube back in for medications . . . until we get the SVT's under control.</span><br />
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<span style="font-size: large;">So, for whatever reason the doctors are getting aggressive with our little guy. They decided to try him off oxygen today too. When he was awake, he did amazing . . . Sats in the 90s. However, when he fell asleep his breathing became periodic(pauses in his breathing pattern) and he started to desaturate and about 30 min later had to get his nasal cannula back. The doctors also thought it might be best to give him another dose of the Caffeine to try to wipe out the periodic breathing. So one step forward, and two steps back?</span><br />
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<span style="font-size: large;">Crew had his eye exam last week and they are not quite mature yet, so he'll get a re-check two weeks after his last check-up. He should also be getting his MRI this week sometime . . . depending on the SVT situation. He's gaining weight like crazy and is already 6 pounds 1 ounce. </span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Little snuggle bug's getting eyelashes</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">So fun to see him without tubes . . . even if it only lasted 30 minutes.<br /></span></td></tr>
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<span style="font-size: large;"><br /></span>jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-76133477877457068472013-07-12T20:51:00.000-07:002013-07-12T21:40:31.243-07:00We're getting TIRED of the NICU Roller Coaster!<div class="separator" style="clear: both; text-align: center;">
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<span style="font-size: large;">Crew is 47 days old today. He weighs a whopping 5 pounds 14 ounces today. He is still eating like a champ . . . both breast and bottle. The doctors pulled his NG feeding tube out a few days ago, but they had to put it back in the next evening because he was a tiny bit exhausted. He's pooping and peeing well too! He's getting a bit more </span><span style="font-size: large;">feisty when he's awake and complains when we're messing with him too much. And, he still loves a good soak in the tub.</span></div>
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<span style="font-size: large;">He is now on a 3/4L nasal cannula with FiO2's in the 20% range. So, he's doing a lot better in the lung department. His hematocrit has come up just a smidge to 27, so he's still on the pale side. His other lab work looks great. Knock on wood, no signs of infection and his ANC (fighting army) is holding in the 800 range which is adequate.</span></div>
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<span style="font-size: large;">Now on to the more stressful stuff! A Cardiac-electrophysiologist (Dr. Anderson) from Spokane flew in to Boise to consult on Crew's case today. He is a doctor that specializes in the electrical activities of the heart. He was full of a lot of information and very positive about Crew's outcome. None-the-less he said that this was a very difficult case and that Crew's situation is making everyone work very hard. He wants to try to change his medications again to see if we can get control of the persistent SVT episodes. Also, the past few days Crew's been having an occasional . . . pause . . . in his heart rate. Talk about scary!! These "pauses" are different than a typical premie bradycardic episode. His heart rate will just out-of-the-blue pause for a second. So, his ECG tracing will sometimes read "0" or "19" when it should be "120" . . . ugghh! This is not a good thing, as you can imagine. So, we are going to discontinue his Propanolol(beta blocker), and at the same time increase his Flecainide dose. If this doesn't do the trick within a couple of days, they will wean the Flecainide a bit and add the drug Sotalol back in to the picture. If the Sotalol doesn't work, there are still a couple more medication options to try out, but hopefully we won't have to go there. Throughout all of this medication "tweaking" we may have to deal with more SVT episodes. They may even be more prolonged if the medication isn't working. Or, if the doses get too high we might see his heart rate drop to really low levels. So, the specialist wants to put an IV hep-lock back in . . . just in case of emergency. Doesn't this make you feel all warm and fuzzy? Us too!!! All of these "unknowns" and "what-if's" and "wait-and-see's" are a tad bit stressful to say the least. We know that Crew is strong and that he is a fighter, but seriously the poor guy could use a break. We pray that we will find a medication combination that will get him under control sooner than later . . . for all of our sakes. </span></div>
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<span style="font-size: large;">Now, on to the adorable photo updates!! </span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Snuggling Mommy</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Puckering up for whoever wants a kiss!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Big Yawn!!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Just being Cute!</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">First time snuggling with Grandpa Schow</span></td></tr>
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<tr><td class="tr-caption"><span style="font-size: large;">Sound asleep after eating</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Great Grandma Edith finally got a chance to do some snuggling too</span></td></tr>
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<span style="font-size: large;"><br /></span>jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com1tag:blogger.com,1999:blog-334706619060164971.post-91388905921170617512013-07-05T10:09:00.001-07:002013-07-05T11:30:32.797-07:00Long and overdue Update!<span style="font-size: large;">Whoa! It's been a day or two or three? Crew's been "cruising" along the past few days like a typical premie. Never without some sort of issue or concern, but mostly typical premie stuff. He graduated to a crib a few days ago, and has been struggling with trying to keep warm. He has minimal body fat, and has to burn calories in order to stay warm. He's dressed, swaddled, wears a hat and has another warm blanket covering him, and still manages to be cold at times. This is a somewhat normal premie issue. He has been having "periodic breathing" episodes where he takes long pauses in his breathing pattern and subsequently drops his heart rate and his oxygen saturation and has to be stimulated to return to a regular breathing pattern. Again, this is an issue that we see with most premies. A couple things about his episodes make them a bit more scary than the average Joe. First, he's on the medication Propanolol, that lowers his heart rate. His resting heart rate has been running around the high 80s to 90s . . . most babies run around 120-140. So, when he drops his heart rate(brady's) with the periodic breathing, his heart rate drops really low to around 20 or 30. This is scary to see, but he brings it right back up with stimulation. The doctors gave him a loading dose of Caffeine (a drug to stimulate regular breathing), to see if this will minimize his "spells".</span><br />
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<span style="font-size: large;">He's still on his nasal cannula at 1Liter with his FiO2 running around the mid 20's to 30's. He still tires really easily, but loves to snuggle and be held upright and on his tummy. He is becoming quite the breast feeder. He had one feed yesterday that didn't require any supplementing with the feeding tube. This is a great accomplishment. Hopefully he will start having more and more good feeds like this so he can get his feeding tube out. </span><br />
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<span style="font-size: large;">He is still having a few SVT episodes . . . even with the medication. The episodes are only lasting anywhere from a few seconds to a few minutes. He either pulls himself out, or we help him to "vagal" out of it. The Cardiologist said this might be his "norm" for a while. We hope that as he grows and get's stronger, his heart will decide to choose the regular path with each beat, and not that darn accessory pathway.</span><br />
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<span style="font-size: large;">His ANC (absolute Neutrophil count) has been trending on the low side since birth. This basically means that the number of overall white blood cells are low . . . or his fighting army isn't sufficient. This compromises his immune system making him more susceptible to infection. The doctors ordered a consult with the Hematologist. He said that for now, they aren't too concerned. If the low numbers persist, they might want to run more tests. His hematocrit (number of red blood cells) is also low at 25. He may need to have another blood transfusion. This is somewhat normal for premies to have low red cells because of all the blood that is taken for testing. The doctors want to give him the opportunity to make his own new red blood cells, which he is doing, but if he can't keep up, a transfusion will be needed. Again, this low HCT affects his stamina . . . making all activities a little bit harder. They tested his Thyroid . . . which is a tiny bit low too. Again, because he was so sick in his first few weeks of life, we're hoping this resolves itself. </span><br />
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<span style="font-size: large;">Crew will be getting an eye exam this week to check for "bleeding". Premies are at risk because of their weak vessels for bleeding and scarring. The Eye doctors watch this closely, and if they see any bleeding, can surgically laser the area of concern to stop the bleeding, and prevent too much eye damage. Hopefully this won't be an issue with him because he was over 28 weeks at birth. But, because he was so sick . . . who knows what is to be expected. </span><br />
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<span style="font-size: large;">He will also be getting an MRI soon to look closely at his brain for any potential damage from his illness. It seems like there is always something to be concerned or worry about. We all know that worry doesn't help, but prayers do! So, we keep praying for continued healing and progress.</span><br />
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<span style="font-size: large;">Crew had a lot of "firsts" this past week. His first real breast feed, he moved to a crib, had his first tub bath, and his first 4th of July. Grandma held him for the first time, and so did auntie Dalynn. Lot's of photos to follow.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg32Ar81tzkjjJk2AnQg6ir2Py8p3Ni51TwQX0KLTu3MjnwOTmkSEcL6ZjTDFwp3FqKiMWIdFZX03EgAIHudXDsyhdq-60c4xBK76KZwz0VHR9HxidYWkrL_cmPNrrYAZkPwNYV97ebi-am/s1600/IMG_2375.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg32Ar81tzkjjJk2AnQg6ir2Py8p3Ni51TwQX0KLTu3MjnwOTmkSEcL6ZjTDFwp3FqKiMWIdFZX03EgAIHudXDsyhdq-60c4xBK76KZwz0VHR9HxidYWkrL_cmPNrrYAZkPwNYV97ebi-am/s400/IMG_2375.JPG" width="300" /></a><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Holding hands during cares</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5aGB3Kl6GaRpZFkMUjZ4SZYLGJ_uUjCigvxhSOLAJTezrryyBx8237b6ubBZMPogB5apInnie3sCAuUAMeeoYOT97N1D14NFcY9nYZXojQy8fBsWHCu9nwgefULrmTgNSYUI6IayDMSPw/s1600/IMG_2427.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5aGB3Kl6GaRpZFkMUjZ4SZYLGJ_uUjCigvxhSOLAJTezrryyBx8237b6ubBZMPogB5apInnie3sCAuUAMeeoYOT97N1D14NFcY9nYZXojQy8fBsWHCu9nwgefULrmTgNSYUI6IayDMSPw/s400/IMG_2427.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Grandma holding Crew for the first time</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7Kw3HVsZWi5nhGNfoYMfLU-Ip6gsFvxqr0NHjrad-qwDuQNRYknAxbvGrxIY1s2XE-JHJoSsAmj0toQamLH50roD78o0wElSm-KoE1b_jWDboszraUJYziTIrpYIMoTW9WyBTdDxzPbJr/s1600/IMG_2391.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7Kw3HVsZWi5nhGNfoYMfLU-Ip6gsFvxqr0NHjrad-qwDuQNRYknAxbvGrxIY1s2XE-JHJoSsAmj0toQamLH50roD78o0wElSm-KoE1b_jWDboszraUJYziTIrpYIMoTW9WyBTdDxzPbJr/s400/IMG_2391.JPG" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Swaddled in warm blankets after his bath</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6G3Fhdr-7QLvQEBIUt-xPv7H6CEPbRKmEMTu-BoauFbYOO9ppS8AXLgQgAj7gPtFgdn5A61xShXqEEhhq1o-eH7bhK8BkWi3Vo8T_a-LAONRTVSKQKXz9a294HJstJ8DYbNGAvQLmdQJl/s1600/IMG_2420.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6G3Fhdr-7QLvQEBIUt-xPv7H6CEPbRKmEMTu-BoauFbYOO9ppS8AXLgQgAj7gPtFgdn5A61xShXqEEhhq1o-eH7bhK8BkWi3Vo8T_a-LAONRTVSKQKXz9a294HJstJ8DYbNGAvQLmdQJl/s400/IMG_2420.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">He's all puckered and ready for kisses</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqGaIBI1LmncKd1hjnHrIRrJhcWVpIUzqCxme13Te-G65b-_h0hAukrE1Q5L_rO7Iu-QeW4K6enY3tZOPqOeHVc0PWvgV9ExfGkjvkwBoLFmcwYlvZLQJBNBbztfp1v9DGmMzg1-9A0eXW/s1600/IMG_2421.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqGaIBI1LmncKd1hjnHrIRrJhcWVpIUzqCxme13Te-G65b-_h0hAukrE1Q5L_rO7Iu-QeW4K6enY3tZOPqOeHVc0PWvgV9ExfGkjvkwBoLFmcwYlvZLQJBNBbztfp1v9DGmMzg1-9A0eXW/s400/IMG_2421.JPG" width="300" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Crew loves his binki and his binki buddy</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgu7p5wNuMo3EGlgkqnI0jCHLF_6jmgg_wShQ1x25bp55O2sk01evnfpRTy7FE01viTnktHVRGihtcevd0a9YgRGC_ge1XdZLC4EYuPxtjC8K6pDZJrTpc-_PC25-Ww709vOYM-B23mWW6W/s1600/IMG_2422.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgu7p5wNuMo3EGlgkqnI0jCHLF_6jmgg_wShQ1x25bp55O2sk01evnfpRTy7FE01viTnktHVRGihtcevd0a9YgRGC_ge1XdZLC4EYuPxtjC8K6pDZJrTpc-_PC25-Ww709vOYM-B23mWW6W/s400/IMG_2422.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Daddy is tired after a long day of work</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPqrghwsUKbiwsYDmXgvARaFc-22mdPlX3KuxseqsxUNASjXQIkw9Mj2Aa0AUlHHDb1TzYTtgFh1rd70JEXFRlcywRjH69Hx_h2Eg43kd_IK8-Jmz5XysO2x5i_av_2hCGbEQEuTELV7wF/s1600/IMG_2423.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPqrghwsUKbiwsYDmXgvARaFc-22mdPlX3KuxseqsxUNASjXQIkw9Mj2Aa0AUlHHDb1TzYTtgFh1rd70JEXFRlcywRjH69Hx_h2Eg43kd_IK8-Jmz5XysO2x5i_av_2hCGbEQEuTELV7wF/s400/IMG_2423.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Talk to the hand</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">"Auntie Dalynn" holding for the first time</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Dad and mom giving Crew his first tub bath. The nurses put towels in tub for padding, and wrap him up to make him feel secure and keep him warm. There is also a heat lamp overhead to add some extra warmth.</span></td></tr>
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEsFTZgDG-IkPS2jhEEWSkZeE2T6FCBmGJuYKRX-CbJXTeAKxHMqYoiVGvub9k-q3OsUYlwnYQZ08tYuCK3dFW1LTnW0gl9qzDlYZCnWihLa1DdZF74aRFw6O2cy5ynNellXeRsCa_kTYV/s1600/DSC_6280.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEsFTZgDG-IkPS2jhEEWSkZeE2T6FCBmGJuYKRX-CbJXTeAKxHMqYoiVGvub9k-q3OsUYlwnYQZ08tYuCK3dFW1LTnW0gl9qzDlYZCnWihLa1DdZF74aRFw6O2cy5ynNellXeRsCa_kTYV/s400/DSC_6280.jpg" width="320" /></a></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">He was so relaxed in the tub and didn't even cry. He kept his eyes closed until we shut off the heat lamp. You can see how well his little abdominal scar healed, but his cord still hasn't fallen off.</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEaksYdVrJ6e0k_tz9TK22M5vZXTnZFkyv9_Rk1otK0PXnJsFzsQbwKKvgf7t8WMQbpFOioLvICz7Fjelx3UI9HxaeOQ0CV4IBLuXrareaSrJtKj34RyqyiP2S0pRc6jb5P2tg-gmMyf_7/s1600/DSC_6308.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="265" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEaksYdVrJ6e0k_tz9TK22M5vZXTnZFkyv9_Rk1otK0PXnJsFzsQbwKKvgf7t8WMQbpFOioLvICz7Fjelx3UI9HxaeOQ0CV4IBLuXrareaSrJtKj34RyqyiP2S0pRc6jb5P2tg-gmMyf_7/s400/DSC_6308.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Crew's first 4th of July. Look at the cute little star on his bum.</span></td></tr>
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO3YwpN7Is_sgR0RUXQ8Pagt0mUli22Iy8Hlaln_1JUMs4gHXQZdPh-lyDbfuoCvN2v96YvffZFzAoFyyfQ31MmVrYV45Iz2JcuULTd27dkxOR7M9R4q3oqCaVFDivtdlz3SWDRZjxaeAP/s1600/DSC_6314.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO3YwpN7Is_sgR0RUXQ8Pagt0mUli22Iy8Hlaln_1JUMs4gHXQZdPh-lyDbfuoCvN2v96YvffZFzAoFyyfQ31MmVrYV45Iz2JcuULTd27dkxOR7M9R4q3oqCaVFDivtdlz3SWDRZjxaeAP/s400/DSC_6314.jpg" width="400" /></a></span></div>
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">He was starving when I took these photos, so we had to be quick. He's rooting around looking for his food.</span></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPUCPxmyDj6HNWb_lp06DCg5VOa9QQhkMbq8bOMeMdWSSHypiMScta-46LZ1Lh8dodqaqOiTplaHzNwyVdJ2ox8cmRkNQmEVGU7DPvyjpH5zM2APxxzlQDrpf-NFAilTAlYJTKKK6zPfmn/s1600/DSC_6325.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPUCPxmyDj6HNWb_lp06DCg5VOa9QQhkMbq8bOMeMdWSSHypiMScta-46LZ1Lh8dodqaqOiTplaHzNwyVdJ2ox8cmRkNQmEVGU7DPvyjpH5zM2APxxzlQDrpf-NFAilTAlYJTKKK6zPfmn/s400/DSC_6325.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Photo op with Aunt NeeNee</span></td></tr>
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jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0tag:blogger.com,1999:blog-334706619060164971.post-79089685697144965032013-06-29T09:51:00.001-07:002013-06-29T14:54:30.853-07:00Another cute video<iframe allowfullscreen="" frameborder="0" height="344" src="//www.youtube.com/embed/ewSHrPOcdG0" width="459"></iframe><br />
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<span style="font-size: large;">So, the SVT episodes are becoming a lot less severe. Yesterday he only had 2 in a 24 hour period and each one only lasted around a minute. He also self converted with both episodes. He is on an increasing dose of Propanolol and Flecainide orally, and his Esmolol drip has been weaned to around 350 mcg/kg/min. We're crossing our fingers that the oral medication dosages are finally therapeutic.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">If it's not one thing it's another in the life of a premie. Now the poor little guy in anemic. His hematocrit is around 25, which is low and makes him have even less stamina. His lab work has also been a little suspicious. In a nut shell, his WBC count is very low. The doctors have run more tests for infection and other things. Basically his immune system is very shut down right now, and he's susceptible to infection. He was started on antibiotics yesterday.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">His lungs are wet again. Because of all the medications he's been getting through his PICC line, he's a bit fluid overloaded. In premies, the extra fluid they receive has a tendency to go straight to their lungs. So, he's on the RAM (c-pap) cannula with a peep of 6 and around 30% oxygen. He received a half of a dose of diuretics yesterday to help pull some of the fluid off his lungs. He tires easily, but otherwise acts appropriately. No breastfeeding while he's on the RAM . . . bummer for him.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">On a positive note, he's still tolerating his breast milk feeds. A couple of days ago, they started adding even more calories to his milk. They add a fortified powder to each ounce of breast milk, bringing the caloric content up to 24calories/ounce. He's having the nice seedy breast milk poops and peeing well. His abdomen in nice and soft and he loves his pacifier.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I will most likely only be updating the blog every couple of days until I can get Gretchen transitioned to the job. She spends around 15 to 16 hours in the NICU every day, so hopefully she can start journaling her experience right here.</span>jenniferhttp://www.blogger.com/profile/05539059729960038741noreply@blogger.com0