Sunday, September 29, 2013

Has it been over 2 weeks already?

It has been a while since I posted last so I thought I would give everyone a quick update... Crew has been doing great!  He had another eye appointment last week and his right eye is fully mature and his left is almost there!  Dr. Lee cleared him and we don't have to see her again for his eyes for 3 months!! Yeah!  

Crew did have to go back on oxygen this week so that was a little bit of bad news, but we will take it.  He only has to wear it when he is sleeping so not too bad... he doesn't much care for it though!  We did an oxygen study on him 2 different nights and the Pulmonologist felt like he could use some more oxygen when he sleeps.  We think this is just due to how sick his lungs were in the beginning and that they are taking time to regenerate to their full capacity.  

We also saw the Hematologist 2 week ago and Crew's labs continued to trend low. Dr. Camilo (the Oncologist/Hematologist) spent a lot of time with us going over what could be causing this and what he felt it might be...I left there feeling very overwhelmed and scared. Well, we went again this past week for our 2 week check-up and Crew's lab work was NORMAL!!  Dr. Camilo was as pleased with this and we were!!  He said that this was a VERY good sign and they he would just check it again in a month.  If his numbers continue to be normal he will clear us with just a follow-up down the road!!  Such great news.  As I sat waiting for our appointment with Dr. Camilo at the Mountain States Tumor Institute for Pediatrics this past week, I realized again how blessed we are to have such a healthy boy at home with us!!  Watching the children and families come in and out of that waiting room made me feel truly thankful for what we have been handed.  

Now, on to what Crew has been up to lately.....he is smiling like crazy and those smiles melt me!!  He is the most smiley right when he wakes up!!  He also discovered his voice this week and tells us all kinds of stories! He has been a much happier boy these past couple of weeks, which we are really loving!  He likes to look at his toys and loves to watch the ceiling fan.  The turkey is already fitting into 3-6 month clothing without much room to grow!  I packed up his 0-3 month things and almost shed a tear...he is growing way too fast.  At his appointment this past week he was 13 and 1/2 lbs!!! We will be taking our first road trip this coming weekend (Rupert) and I feel like I am going to have to pack the house up.....babies need a lot of stuff!!  We are looking forward to getting out of the house for a few days for some different scenery....hopefully he likes Grandma and Grandpas house!!

Here is a sneak peak at our happy boy!!  I will have Jen post more photos and maybe some video too so stay tuned....



1 comment:

  1. The ceiling fan? That is funny because Micah will stare at our ceiling fans too. Our house looks like Babies R Us threw up in the living room and his favorite toy is the ceiling fan. LOL LOL So glad he is doing so well -} Micah is about 13 lbs as well--xxoo

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